Difference between revisions of "HGH"

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In the haze that follows a new diagnosis of an infant, there are several things that you can start doing right away.
 
In the haze that follows a new diagnosis of an infant, there are several things that you can start doing right away.
 
# Make an appointment with a pediatric endocrinologist. Your pediatrician can give you the name of a good one. The appointment should be made ASAP as it may take 2-4 months to get an appointment. Note that sometimes the geneticist can also take responsibility for prescribing growth hormone.
 
# Make an appointment with a pediatric endocrinologist. Your pediatrician can give you the name of a good one. The appointment should be made ASAP as it may take 2-4 months to get an appointment. Note that sometimes the geneticist can also take responsibility for prescribing growth hormone.
# Make an apointment for a sleep study. Most pediatric endocrinologists will require a sleep study before the prescribe HGH. It may take 1-2 months to get an appointment for a sleep study. The pediatric endocrinologist or your pediatrician can give you a referreal for a sleep study.
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# Make an appointment for a sleep study. Most pediatric endocrinologists will require a sleep study before the prescribe HGH. It may take 1-2 months to get an appointment for a sleep study. The pediatric endocrinologist or your pediatrician can give you a referral for a sleep study.
 
# Consider calling PWSAUSA and determining the closest PWS expert to your area. We went ahead and booked an appointment with our closest expert for a second opinion. This is probably not necessary but we have already found it to be useful.
 
# Consider calling PWSAUSA and determining the closest PWS expert to your area. We went ahead and booked an appointment with our closest expert for a second opinion. This is probably not necessary but we have already found it to be useful.
 
# Read up on HGH from the information supplied by PWSAUSA.
 
# Read up on HGH from the information supplied by PWSAUSA.
 
 
  
 
== Important Links ==
 
== Important Links ==
  
* [http://www.pwsausa.org/syndrome/GHQ&A.htm GH Q&A from PQSAUSA]
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* [http://www.pwsausa.org/syndrome/GHQ&A.htm GH Q&A from PWSAUSA]
 
* [http://www.pwsausa.org/syndrome/pharmacia_brochure_english.pdf Phamacia brochure] (pdf)
 
* [http://www.pwsausa.org/syndrome/pharmacia_brochure_english.pdf Phamacia brochure] (pdf)
  
The thing I cling to above all is the belief that early stimulation can lead to cognitive development. I belive that GH allows for movement which allows for exploration of the environment which allows for the  neurological stimulation which allows for cognitive development and normal intelligence. Read the posts of the moms of kids who went on GH early. Their kids are of normal intelligence and sometimes even smart. There is no proof that it is the growth hormone that allows for this, but I believe that it is a huge component.
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== My personal views on GH ==
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The thing I cling to above all is the belief that early stimulation can lead to cognitive development. I believe that GH allows for movement which allows for exploration of the environment which allows for the  neurological stimulation which allows for cognitive development and normal intelligence. Read the posts of the moms of kids who went on GH early. Their kids are of normal intelligence and sometimes even smart. There is no proof that it is the growth hormone that allows for this, but I believe that it is a huge component.

Revision as of 04:29, 28 November 2004

First Steps

In the haze that follows a new diagnosis of an infant, there are several things that you can start doing right away.

  1. Make an appointment with a pediatric endocrinologist. Your pediatrician can give you the name of a good one. The appointment should be made ASAP as it may take 2-4 months to get an appointment. Note that sometimes the geneticist can also take responsibility for prescribing growth hormone.
  2. Make an appointment for a sleep study. Most pediatric endocrinologists will require a sleep study before the prescribe HGH. It may take 1-2 months to get an appointment for a sleep study. The pediatric endocrinologist or your pediatrician can give you a referral for a sleep study.
  3. Consider calling PWSAUSA and determining the closest PWS expert to your area. We went ahead and booked an appointment with our closest expert for a second opinion. This is probably not necessary but we have already found it to be useful.
  4. Read up on HGH from the information supplied by PWSAUSA.

Important Links

My personal views on GH

The thing I cling to above all is the belief that early stimulation can lead to cognitive development. I believe that GH allows for movement which allows for exploration of the environment which allows for the neurological stimulation which allows for cognitive development and normal intelligence. Read the posts of the moms of kids who went on GH early. Their kids are of normal intelligence and sometimes even smart. There is no proof that it is the growth hormone that allows for this, but I believe that it is a huge component.