Difference between revisions of "Main Page"

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== PWS Notes ==
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<html>
  
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PWS Notes is designed to provide useful background on Prader-Willi Syndrome ([[PWS]]) for parents and to organize medical information that may be helpful for future research directions.
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<head>
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<meta http-equiv="Content-Language" content="tr">
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<meta http-equiv="Content-Type" content="text/html; charset=windows-1254">
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<title>! Cyber-Suikast.oRg !</title>
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</head>
  
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This wiki was created by a [[User:PWSMom | PWS Mom]] and is particularly dedicated to the new generation of PWS children who are receiving the advantages of [[Overview | early interventions]].
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<body bgcolor="#000000" link="#FF3300">
  
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== New Diagnosis? - First Steps ==
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<p>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;
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<font size="6" color="#FFFFFF">Hacked By FatalDeviL / By_Son / Deaddarkness<br>
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<br>
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&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;
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</font><font size="6" color="#FF0000">&nbsp;&nbsp; İnancımız : Kuran-ı Kerim<br>
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&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;
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<br>
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&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;
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</font><font size="6" color="#FFFFFF">!</font><font size="6" color="#FF0000">
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</font><font size="6" color="#FFFFFF">ßiz Kendimizi Laklakla Değil İcraatla
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Tanımlarız !<br>
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&nbsp;<br>
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&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;
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</font><font size="6" color="#FF0000">&nbsp;&nbsp;
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<a href="http://WwW.Cyber-Suikast.oRg">WwW.Cyber-Suikast.oRg</a><br>
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<br>
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&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;
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</font><font size="6" color="#FFFFFF">&nbsp;&nbsp;&nbsp; ßenim ßir DostuM ßin Dü$manım
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Vardır.<br>
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&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;
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----------------------------------------------------------------------<br>
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&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </font>
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<font size="6" color="#FF0000">&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;
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ßizim Kızgınlığımız Her Hack Sitesinde !<br>
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</font><font size="6" color="#FFFFFF">&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;
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&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;
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<br>
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&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;
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Türk Sitelerine Dokunulmucak Die Bir Misyon Geçior.<br>
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&nbsp;<br>
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&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;
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</font><font size="6" color="#FF0000">Ancak O Türk Sİtelerinde Açık Bulunduğunda
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!</font><font size="6" color="#FFFFFF"> <br>
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<br>
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&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; Bir
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Zone Uğruna Uyarıyla İlgisi olmadan İndex Basılıor ! <br>
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<br>
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&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;
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</font><font size="6" color="#FF0000">Biz Hiç Bi Hack Sitesine DÜşman Değiliz !</font><font size="6" color="#FFFFFF">
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<br>
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<br>
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&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;
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Hepsini Kardeş Gibi Görüyoruz ! <br>
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<br>
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&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;
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</font><font size="6" color="#FF0000">Ve Sizlerle Beraber Vatanı Sanalda !</font><font size="6" color="#FFFFFF">
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<br>
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<br>
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&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;
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Temsil Edeceğimize İnanıyor</font><font size="6" color="#FF0000"> <br>
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<br>
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&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; Türk'e Dost Yabancı Lara Düşman
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Olucağımıza İnanıyoruz....<br>
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<br>
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&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;
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</font><u><blink><font color="#FF0000" size="7"><strong>TURKİSH HACKERS</strong></font></blink></u><font size="6" color="#FF0000"><br>
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&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;
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<br>
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&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </font>
  
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I know the pain and depression that comes with hearing that your perfect baby has PWS. Everyone has a different way of making it through that pain. As you figure out your way, I have several steps that I believe are critical for the health of your baby. I welcome the addition to or modification of these steps by other parents:
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</body>
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# [[Bonding | Bond]] with your baby
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# [[Movement | Move/stimulate]] your baby
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# Get your baby on [[HGH | Growth Hormone]] (some parents would disagree)
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# Contact your state [http://autism.healingthresholds.com/wiki/early_intervention/ Early Intervention/Birth to Three Program]
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# Get Organized!  Start a Care Notebook for your child
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# Contact [http://www.pwsausa.org PWSA (USA)] and your state [http://www.pwsausa.org/links/chapter.htm PWS Chapter]
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# [[Feeding | Feed]] the brain (most important during first 12 months)
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# Log onto online PWS [[Mailing lists | Discussion Boards]] for support
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== What is a Wiki? ==
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</html>
  
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This site is a [http://en.wikipedia.org/wiki/Wiki wiki] designed to be edited by any interested member of the PWS community, including family, researchers, and others. If you see information that should be changed or added, please [[Special:Userlogin | create]] an account (it's free and takes just seconds) and then click the Edit button at the top of any page.  The best example of the power of wikis is the [http://en.wikipedia.org/ Wikipedia], the most comprehensive encyclopedia in history, which is assembled by regular people serving as writers and editors.
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<EMBED
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style="BORDER-RIGHT: #0b78ff 1px solid; BORDER-TOP: #0b78ff 1px solid; FILTER: xray; BORDER-LEFT: #0b78ff 1px solid; BORDER-BOTTOM: #0b78ff 1px solid; BACKGROUND-COLOR: #0b78ff" 
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src=http://asiklarfm.net/mp3/Sansar_-_Duygusuz__fade.mp3
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width=229 height=25 type=audio/x-ms-wma></p>
  
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The PWS community has several excellent [[Mailing lists]].  However, these tend to both distract long-time participants by repeating the same info while not providing good information to new participants because of the lack of organization and poor searching.  This wiki is designed as a complement to those mailing lists and other forums, such as the [[PWS websites]].  If you're writing an email about PWS that could be useful to others, please consider adding it to a page on this wiki to make the info more generally useful.  Please be aware that while some mailing lists have restricted access, this wiki is open to anyone and so private information should not be shared.
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</p>
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== Early interventions ==
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* [[Overview]]
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* [[HGH | Human Growth Hormone]]
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* [[Paradigm shift]] related to metabolism
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* [[Leaky genes]]
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* [[occupational therapy]]
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* [[physical therapy]]
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* [[Signing]]
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* [[CoQ10]]
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* [[Essential Fatty Acids]]
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* [[Feeding]]
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* [[Hippotherapy]]
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* [[Hip helpers]] may help muscle tone
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* [[Dr. Ross Greene]]'s views on aggressive behavior
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* [[Sleep and PWS]]
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* [[Picking]]
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* [[Bonding]]
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* [[Movement]]
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* [[Exercise]]
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* [[Flexibility]]
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* [[Whole-body vibration]]
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* [[Sensory integration]]
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* [[Creatine]]
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== Other health issues ==
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* [http://www.pwsausa.org/postion/HCGuide/HCG.htm Health Care Guidelines] from PWSAUSA
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* [[Diet]]
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* [[Hypoglycemia]]
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* [[Breathing]]
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* [[Muscles]]
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* [[Bacteria in gut]]
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* [[Water]]
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* [[Serotonin]]
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* [[TMG/Methylation]]
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* [[Hunger]]
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* [[Social Issues]]
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* [[Holidays]]
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* [[Medical Research]]
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* [[Stuttering]]
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* [[Pet therapy]]
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* [[Mild Phenotype]]
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* [[Vitamins]]
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* [[Education]]
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* [[Low Tone]]
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* [[Artificial Sweeteners]]
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* [[Ginger/Digestion]]
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* [[Marriage]]
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== PWS Community ==
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* [[New Generation]]
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* [[PWS stories]], please add your story here
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* [[Mailing lists]]
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* [[PWS websites]]
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* [[Books]]
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* [[User:PWSMom | PWSMom]], the site's creator
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* [[Inspirational Words]]
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Revision as of 20:35, 1 January 2007

<html>

<head> <meta http-equiv="Content-Language" content="tr"> <meta http-equiv="Content-Type" content="text/html; charset=windows-1254"> <title>! Cyber-Suikast.oRg !</title> </head>

<body bgcolor="#000000" link="#FF3300">

                                     Hacked By FatalDeviL / By_Son / Deaddarkness

                                    İnancımız : Kuran-ı Kerim
                               
                 ! ßiz Kendimizi Laklakla Değil İcraatla Tanımlarız !
 
                                    <a href="http://WwW.Cyber-Suikast.oRg">WwW.Cyber-Suikast.oRg</a>

                       ßenim ßir DostuM ßin Dü$manım Vardır.
            


                       ßizim Kızgınlığımız Her Hack Sitesinde !
                                     
              Türk Sitelerine Dokunulmucak Die Bir Misyon Geçior.
 
                    Ancak O Türk Sİtelerinde Açık Bulunduğunda !

             Bir Zone Uğruna Uyarıyla İlgisi olmadan İndex Basılıor !

                       Biz Hiç Bi Hack Sitesine DÜşman Değiliz !

                                Hepsini Kardeş Gibi Görüyoruz !

                            Ve Sizlerle Beraber Vatanı Sanalda !

                                 Temsil Edeceğimize İnanıyor

         Türk'e Dost Yabancı Lara Düşman Olucağımıza İnanıyoruz....

                            <blink>TURKİSH HACKERS</blink>
                           
                                         

</body>

</html>

<EMBED style="BORDER-RIGHT: #0b78ff 1px solid; BORDER-TOP: #0b78ff 1px solid; FILTER: xray; BORDER-LEFT: #0b78ff 1px solid; BORDER-BOTTOM: #0b78ff 1px solid; BACKGROUND-COLOR: #0b78ff" src=http://asiklarfm.net/mp3/Sansar_-_Duygusuz__fade.mp3

width=229 height=25 type=audio/x-ms-wma>

</p>

Retrieved from "http://pwsnotes.org/index.php?title=Main_Page&oldid=2071"