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Kathryn
Re: Milestones, I'm sorry I haven't posted Kathryn's but honestly I didn't keep track of specifics. Before K was born, my mom gave me this neat baby book. As my due date came near, I'd write stuff in it. I took the book to the hospital on my induction date and after K was born (a day later via c-section), I opened the book to make an entry and the page read: "How I felt on the day you were born...." How could I write - horrified, scared out of my mind, uncontrollably sad? I couldn't start a baby book like that and I couldn't just skip the page, so I didn't keep track. Generally here goes:
EI 2 months coq10 2 months Private PT 3 months (2 times per week)(this PT ended when walking was down) GH 5 1/2 months Babbling 5-6 months Rolling 7 months Signing (more, eat, banana, dog) 8 months Sitting 9 months Pulling to stand 10-11 months "Dada", "Elmo" (accidental) 11 months Cruising 11 months More words Walking 16 months Virtually no words or signing from 16 to 19 months Jumping 2.5 years Preschool 3 years Hunger starting to kick in 3 years Talking back with attitude 3 years Stuttering 3 years (here for 1 month and now back again) Potty trained 3.5 years
Erin
Erin is five years old in February 2005
Erin's milestones:
Born 12/10/99 1 week late by c-section 7 lb. 4 oz. 20.5" Apgar 8/9 with low tone did not nurse but took a bottle in hospital went home 2 days old tested negative for Turner's Syndrome diagnosed at 6 months with PWS microdeletion smiled 6 weeks rolled over 5 months sat unassisted & waved bye-bye 9 months started teaching her sign language said mama dada and night-night at 12 months started signing back to us 12 months started CoQ10 13 months commando crawled at 13 months weight bearing on legs 15 months crawled on knees 18 months started GH 20 months walked 2nd birthday potty trained by 3rd birthday potty trained at night 3 months later started regular preschool at 3 continues at regular preschool at our parish writes her name Erin receives private speech therapy and will start kindergarten next fall
AJ
8 1/2 months old in February 2005. 25 lbs 12 ounces at that time
Our son AJ was born 7lbs, scheduled C-section (full term) due to him being breech NICU for the first 5 days (waiting for diagnosis) Bottle fed held head up at 3 months smiled at 2 months CoQ10 at 3 months rolled at 4 months sat alone 5 months begin to babble 5 months, and hasn't slowed down since!! ( mamma, dadda...Boooo(when he is really upset) waved "bye-bye" & clapped hands 9 months at 8 1/2 months can bear weight on legs with help, because he is 25lbs 12oz. Shares everything he has, food, toys etc.
Ryan J.
13 months old in February 2005.
Date: 1/5/2004 C-Section Weight: 3 lbs 9 1/2 oz Length: 17 1/4 in. Gestational Age: 33 wks NICU for almost 2 months Surgeries prior to coming home: G-Tube/Fundoplication Feeding: Has never taken a bottle, g-tube fed takes some baby food Nutrition: Expressed Breastmilk for 7 months, Neosure, now on generic Pediasure Diagnosed March of 2004 Prader Willi (FISH) shows deletion at 15q11.2-12
- GH therapy started 12/8/2004
Discharge Date at NICU: 2/25/2004> Appointments: Surgeries since home: An unsucessful tonsillectomy resulting in a punctured lung/ICU, a sucessful tonsillectomy. Soon to have ear tubes and testes brought down. Milestones: Smiled-2-3 months Held and shook rattle- 6 months Laughed- 7 months....didn't laugh again until 9 months Bat at toys- 7 months Rolled to sides: 4-5 months Play pat-a-cake: 10 months Sitting supported: 12-13 months Bearing weight on legs (while being held for VERY short periods of time)12 months Starting to play peek a boo at 13 months Still wants NOTHING to do with putting weight on arms/hands.
Gabriel
7 months in February 2005 Current Weight: 8.36 kg / 18 lbs 39 oz; 50th percentile Current Length: 26 1/2 inches; 50th percentile
Birth
Date: 07/02/2004
Weight: 2.670 kg; 5th percentile
Length: 52.0cm; 50th percentile
HC: 35.0cm
Gestational Age: 40 wks
APGARS: 8 at 1 minute and 9 at 5 minutes
NICU Admission
Date: 07/05/2004
Admission Indications: hypotonia, clinical sepsis and undescended testicle
Feeding: Baby was fed po and had chocking episode and turned blue. Feeding was changed to NGT. PO feeding by speech therapist only.
Nutrition: Expressed Breastmilk for 38 days then switched to formula (Enfamil Lipil with ron)
Diagnosed at 07/16/2004 Prader Willi (FISH) shows deletion chromosome 15 at q11,12
**GH therapy started 07/29/2004
Discharge Date at NICU: 08/09/2004
Appointments: Developmental Clinic (every 3mos), Home Health Nursing (as requested), Pediatric Endocrinology (every 3 mos), Pediatrician (every 2 wks for weight check and every 3 mos for immunizations and check-ups), Speech Therapist (once a week for 1 hr through EIP), Physical Therapy (twice a wk for 1hr through EIP), Occupational Therapy (once a wk for 1 hr through EIP), Pediatric Pulmunologist (consulted for possible aspiration and breathing problems ...had a swallow study...results showed that 1out of 3 trials he aspirated on thin liquids only... plan is to use "thick it" on formula in a honey consistency 'til further notice and chest x-ray showed that lungs were clear...follow-up every 4-5wks), Pediatric Gastroenterologist (consulted for possible reflux...now on zantac...follow-up every 6wks), Pediatric ENT(consulted for congestion and noisy breathing...found out that Gabe has enlarged adenoids...was on Amoxicillin and Flonace for 10days...did not do him any good... still congested and will follow-up every 5wks) Milestones: First Month: ???? mostly asleep Second Month: more awake; focus on a face; follow an object from Left to Right about 6 inches above face; was able to suck from a bottle( takes a lot of patience) Third Month: turn in the direction of a voice; smile spontaneously; on stomach,lift head 45 degrees; follow an object from left-right and up,down and around Fourth Month: bring both hands together;grasp a rattle; reach for an object Fifth Month: hold head steady when upright;introduced sippy cup, introduced rice cereal Sixth Month: on stomach, raise chest, supported by elbows,lift head up 90 degrees; keep head level with body when pulled to sitting; sit in a "frog" position; sit upright propped with pillows; introduced fruits and vegetables Seventh Month: holds sippy cup by himself; feeds himself if he feels like it; shakes his head no no if he's full or pulls away sippy cup/spoon when he's had enough;roll over (one way); laugh out loud; bear some weight on legs when held upright(about 5secs); loves his bouncer; loves to watch TV (esp. Nick JR)object if you try to take a toy away; work to get a toy out of reach;pass a cube or other object from one hand to the other;play peekaboo; knows his name;wave bye-bye; babble such as mmmm,dadada, mahmm when eating or playing; bear some weight on hands/arms when on stomach...and more to come.
Christian
15 months in February 2005
Born at 39 weeks 4 lbs 12 oz apgar 7 & 9 NICU for 2 1/2 weeks n tube & bottle fed in NICU every other feeding for 2 weeks Bottle fed from then on..( a little difficult and a lot of work) smiled at about 11 weeks good head control at 4 months belly laugh at 4 1/2 months dx at 5 months coq10 at 5months some rolling at 6 months (does it when he feels like it) babbled at 6 months sat up at 7 months assisted sat up unassisted by 8 or 9 months claps hands, waves bye, shakes his head no no etc, at 9 months struggled to do tummy time all along (we still have a hard time with this) signs to eat, play, bye, mama, and all done will rock back and forth on hands and knees (still need a lot of work there) very funny, sweet and a pure joy to be around all the time, he is always smiling at everyone he sees and will also go to anyone even strangers (yikes) Just started GH yesterday...(after a very long struggle with our old doctor and had to get a new one)....He turned 15 months on Feb 17th....He is also weight bearing on his legs and definitly prefers to stand than be in a crawl position....He is the happiest little guy I know....
Austin
Born in 2001 at 35 weeks weighing in at 5 lbs even and 18.5 inches via emergency C-section His present weight at 40 months is 31 lbs and 38+ inches. NICU for 2 weeks (minimal oxygen needed and none at home) Tube (NG) for 5 months --this was the most frustrating!!! first smile 2 months laughed out loud (brief moments) 4 months first tooth 8 months and came quickly after that one after the other rolled over unassisted at 8 months (both ways) sat up assisted at 8 months sat unassisted at 10 months sit from a crawl at 11 months commando crawl 11 months-full blown crawl at 12 months wave bye bye 7 months started to cruise at 13 months FOREVER AND EVER AND EVER walking assisted 15 months walking unassisted 17 months and wobbly! this unsteadiness seemed to last a LONG time with lots of bumps and bruises first word "Adam" at 10 months Speech is still delayed but can use 6-7 word sentences when trying ...but still lots of jargon can count to 10 at 40 months YEAH but no alphabet toilet training is a nightmare! He stays dry MOST of the time (except at night) and BM's will never happen! I have no idea of his cognitive ability right now...but I do think he is at least 6-12 months delayed...that is MY opinion and as objective as I think I can be. We have him in a contained preschool with tons of OT and ST. He also gets outside OT every other week and ST every other week on opposite weeks. Hope to start up HIPPO therapy in the spring (he loved it so much and was such a help with trunk control) And swimming starts in a few weeks. He can run, jump, climb, hop off the ground with both feet and is a trip to watch try to skip! He falls more than the average kid and makes me a nervous wreck!!!! We sit in the wings and watch and wait for scoliosis...will he or wont' he? We wait for the food issues/weight issues...but I dont' let it run our lives! We try to be a very functional family.
Luke
Luke (2.5 years old in February 2005) born at 36 weeks 5 pounds 4 oz Nicu stay of 55 days Diagnosed at 7 days old growth hormone and coq 10 began at 18 months old (*the year he has been on gh and coq10 he went from emerging to crawl to walking.)
Head up at 5.5 months
bottle fed
prone up on arms (pre crawl position) emerged at about 10-12 months
Tolerated sitting up - emerged at 10 months (fell a lot)and better by 1 year.
Able to do Come to sit 14/15 months and 18 months
crawl emerged at 18 months and really crawling at 2years
Pulling up, close to 2.
He never really cruised like a typical child. He was more like 2ish when he did the 'motivated cruise' - toys all around in higher places to get him to cruise.
walking emerged at 20 months. He used a walker at 20 months for 7 months. At 27 month he walked wobbly without the walker. At 2.5 months he is walking and running.
Speech, once he walked without falling and wobbling the delay is less. He uses nouns and very seldom verbs. He has a sense of humor. He likes to do/say things to make me laugh.
can not hop or jump
potty trained at 29 months
Appetite -can be considered as a typical 2 year old. His appetite fluctuates. Some days he is hungrier than others. He tolerates being told no well.
Ryan
Turned one in February 2005
Born at 38 weeks....5 lbs 10 oz
Stayed in NICU approximately 3 1/2 weeks - never tube fed after coming home, but we came close..really struggled with the bottle feeding until after growth hormone started. Received OT while in NICU.
Started PT and DT at 2 months - once per week.
Started OT at 3 1/2 months - once per week.
Started growth hormone at 3 1/2 months
Head up about 4 months (not really sure on this one)
Started solids at 6 months
Discovered toes at 6 1/2 months
Sat up unassisted at 7 1/2 months
Rolled over just before 9 months (yes, he was sitting well long before he rolled)
Started babbling just before 9 months
Started cutting teeth (3 came in within about 2 weeks) at 9 1/2 months
Rolling as form of mobility at 10 1/2 months
Clapped hands at 11 months
Minimal, very brief, weight bearing with support at around 11 months
Currently, at 12 months getting stronger everyday pushing up on arms...pre crawling activity..and I can see the beginning of getting up on knees emerging.
Fed Breast milk with formula added to boost calories (started adding formula at 6 weeks) until 12 months..now weaning off breast milk to regular formula...nutritionist recommended waiting until 15 months to introduce dairy products. (Yes, I am still pumping....but not for much longer :-) ...just winding down now
== PWSMom
Info on my son's development is at User:PWSMom.
