Social Issues

Explaining to Friends

Some people notice that our children are different and may ask about the perceived difference. Even though their question likely stems from kind concern, the result is an awkward moment. I know these people have never heard of PWS and some of their eyes would glaze over if I started to tell them any details. While close friends and relatives are likely anxious to learn about PWS, others are less interested about the details.

• I typically respond by saying: He's gotten off to a slow start, but we are working him hard and giving him a lot of love and are amazed with his progress.

• The next level of answer: He has a metabolic problem, somewhat like diabetes and he has difficulty absorbing the energy from food and using it to grow, remain alert, and move his muscles.

• If they are still interested, then have them buy you a cup of coffee and tell them the whole story! :)Or, you can send them here!!

Asperger's

Our children are at risk for Asperger's Syndrome. From the beginning we need compensate by modeling ideal social interaction even though they may not be able to reciprocate our smiles or laugh at our jokes because of their low tone. They should be included in the family activites and stimulated just like any other infant even though they are not able to cry to demand attention or squeal to demonstrate delight.