Social Issues

Question: What do you tell aquaintances and others who say "how's the baby doing?" or "why is he so small?" or "He doesn't look or act like a 3 month old."? It's an awkward moment. I know these people have never heard of PWS and some of their eyes would glaze over if I started to tell them any details. Our close friends and relatives have been wonderful and anxious to learn about PWS. What/how do you tell the people that you see only a few times a year?

Answer: He's gotten off to a slow start, but we are working him hard and giving him a lot of love and are amazed with his progress.

The next level of answer: He has a metabolic problem, somewhat like diabetes and he has difficulty absorbing the energy from food and using it to grow, remain alert, and move his muscles.

If they are still interested, then have them buy you a cup of coffee and tell them the whole story! :)