User talk:Cmaczko

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Tommy: 21 mos, upd, 28lbs, crawling, cruising, vocab: ma (Mom), da(Dad), ba(bottle), mo (more), white, what's that..... on O2 while sleeping (in tent); sats monitored 4x/day, GH since 5.5 mos.. Sleeps OK - occasional night terrors. Generally happy, playful, nice kid - great fun!

Just started Tommy on Carnitine Fumerate today - starting on 1/4 capsule (Doctor's Best, Best L-Carnitine Fumarate, 855 mg, 180 Veggie Caps) 3x/day - first dose 2pm - so he'll only get 2 doses today. Mixing w/a tiny bit of applesauce (organic, no sugar added, of course!). Can't wait to see what happens next.

Note: he's been on L-Carnitine (not acatate - begins w/a T) for @2 wks. Also giving him MSM - would love to hear if anyone else is trying MSM - connective tissue, PH are my interests there.

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